Research Catalog

Title

Management of Prader-Willi syndrome / Louise R. Greenswag, Randell C. Alexander, editors.

Publication

New York : Springer-Verlag, [1995], ©1995.

Items in the Library & Off-site

Holdings

Details

Additional Authors

• Alexander, Randell C.
• Greenswag, Louise R.
• Prader-Willi Syndrome Association. http://id.loc.gov/authorities/names/no91023426

Description

xxi, 393 pages : illustrations; 25 cm

Summary

• Although individuals with PWS and their families face many of the same problems as others who are developmentally disabled, the unique characteristics of the syndrome - cognitive impairment and gross obesity due to uncontrollable hunger - require special care.
• Each chapter addresses the everyday concerns of PWS individuals and their families. The text presents historical, diagnostic, genetic, and medical information to orient the reader, including current research. The major portion of the book deals with pragmatic guidelines that cross countries and cultures and is directed to health, education, and other specialists in academic, clinical, and community settings.
• Management of Prader-Willi Syndrome brings together the contributions of professionals with considerable expertise in diagnosis and management of PWS. Clinical, social, family, and community issues are explored and management strategies identified. To sharpen the reader's perceptions of the "human dimensions" of PWS, selected personal experiences of parents are integrated throughout the text.
• Management of Prader-Willi Syndrome describes strategies for interventions that are appropriate to an interdisciplinary approach.
• Prader-Willi Syndrome (PWS) is a recognizable pattern of altered growth and development. Affected persons face life as potentially overweight, short, sexually immature, developmentally delayed individuals with poor gross motor skills. Usually mildly retarded, stubborn, egocentric, and emotionally labile, they rarely develop the ability to cope with their insatiable hunger and require environmental restrictions to prevent life-threatening obesity.

Subject

• Prader-Willi Syndrome
• Prader-Willi syndrome

Note

• "Under the sponsorship of the Prader-Willi Syndrome Association."

Bibliography (note)

• Includes bibliographical references and index.

Contents

• Preface / The Officers and Board of Directors, Prader-Willi Syndrome Association -- Acknowledgments / Louise R. Greenswag and Randell C. Alexander -- Ch. 1. Overview / Randell C. Alexander, Don C. Van Dyke and James W. Hanson -- Ch. 2. Genetics of Prader-Willi Syndrome / Suzanne B. Cassidy -- Ch. 3. Endocrine and Metabolic Aspects of Prader-Willi Syndrome / Phillip D. K. Lee -- Ch. 4. A Team Approach to Case Management / Vanja A. Holm -- Ch. 5. Medical and Nursing Interventions / Randell C. Alexander and Louise R. Greenswag -- Ch. 6. Dental Manifestations and Management / Arthur J. Nowak -- Ch. 7. Nutritional Management / Diane D. Stadler -- Ch. 8. Physical and Occupational Therapy / Elizabeth True Lloyd and Mary Alice Deusterhaus-Minor -- Ch. 9. Psychological and Behavioral Management / Barbara Y. Whitman and Louise R. Greenswag -- Ch. 10. Speech and Language Issues / Debora A. Downey and Claudia L. Knutson -- Ch. 11. Educational Considerations / Karen Levine and Robert H. Wharton.
• Ch. 12. Social Work Intervention / Barbara Y. Whitman and Lori A. Hilmer -- Ch. 13. Understanding Psychosexuality / Louise R. Greenswag -- Ch. 14. Legal Advocacy for Persons with Prader-Willi Syndrome / Sondra B. Kaska -- Ch. 15. Residential Options for Individuals with Prader-Willi Syndrome / Louise R. Greenswag, Sandra L. Singer, Nancy Condon, Harvey H. Bush, Sharon Omrod, Mary M. Mulligan and Patricia L. Shaw -- Ch. 16. Vocational Concepts in Prader-Willi Syndrome / Anna Marie Saporito -- Ch. 17. A Crisis Intervention Model for Persons with Prader-Willi Syndrome / Jeanne M. Hanchett and Beate Maier -- Ch. 18. A Chronology of Hope: A Case Study / Jack Sherman -- Ch. 19. Two Families' Points of View / Janalee Tomaseski-Heinemann, Al Heinemann and Linda Thornton -- Ch. 20. The Prader-Willi Syndrome Association (USA) / Curtis J. Shacklett and Stewart Maurer -- App. A Sleep Disorders in Prader-Willi Syndrome: Management Considerations / Gila Hertz and Mary Cataletto.
• App. B Growth Charts for Prader-Willi Syndrome / Vanja A. Holm -- App. C Food Exchange Guidelines -- App. D Activity Therapy Guidelines -- App. E.1 Weight Loss Treatment in an Institutionalized Individual with Prader-Willi Syndrome: A Case Study / Franz Klutschkowski and Ira Collerain -- App. E.2 Sample of Token Economy/House Guidelines Program Used with Individuals Who Have Prader-Willi Syndrome / Jeanne Lehrer, Kathy Kobilis and Scott Spreat -- E.3 Sample Positive Reinforcements for Behavioral Management -- App. F.1 Communication Boards -- App. F.2 Product Information for Pragmatic Language Training -- App. G Vocational Training Sample Task Performance Checklists.

ISBN

• 0387943730 (New York : acid-free paper)
• 3540943730 (Berlin : acid-free paper)

LCCN

94029757

Owning Institutions

Columbia University Libraries