Research Catalog

Starting and sustaining genetic support groups / Joan O. Weiss and Jayne S. Mackta.

Title
Starting and sustaining genetic support groups / Joan O. Weiss and Jayne S. Mackta.
Author
Weiss, Joan O.
Publication
Baltimore : Johns Hopkins University Press, 1996.

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Details

Additional Authors
Mackta, Jayne S.
Description
xiii, 153 pages : illustrations; 24 cm
Alternative Title
Starting & sustaining genetic support groups
Subject
  • Genetic Diseases, Inborn
  • Genetic disorders > Services for
  • Patients
  • Self-Help Groups
  • Self-help groups
Bibliography (note)
  • Includes bibliographical references (p. [141]-149) and index.
Contents
1. The Evolution of Self-Help Organizations -- 2. Why People Seek Genetic Support Groups -- 3. Peer Support -- 4. How to Organize a Genetic Support Group -- 5. Communications and Publications -- 6. Meetings and Major Program Areas -- 7. Fund-Raising -- Appendix A: List of Known Genetic Voluntary Organizations -- Appendix B: Resources -- Appendix C: Overview of One Group's Success.
ISBN
  • 0801850231 (alk. paper)
  • 0801852641 (pbk. : alk. paper)
LCCN
95041869
Owning Institutions
Columbia University Libraries