Research Catalog
Principles and practice in biobank governance
- Title
- Principles and practice in biobank governance / edited by Jane Kaye, Mark Stranger.
- Publication
- Farnham, Surrey ; Burlington, VT : Ashgate, c2009.
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| Status | Format | Access | Call Number | Item Location |
|---|---|---|---|---|
| Text | Request in advance | RD127 .P76 2009 | Off-site |
Details
- Additional Authors
- Description
- xxii, 292 p. : ill.; 24 cm.
- Subjects
- Biological specimens > Collection and preservation > Government policy
- Biological Specimen Banks > standards
- Tissue banks > Management
- Biobanks > Management
- Tissues > Collection and preservation > Government policy
- Bioethics
- Clinical Governance
- Public Policy
- Procurement of organs, tissues, etc > International cooperation
- Bibliography (note)
- Includes bibliographical references and index.
- Contents
- What benefit sharing arrangements do people want from biobanks? A survey of public opinion in Australia / Dianne Nicol and Christine Critchley -- Reconsidering altruism, introducing reciprocity, and empowerment in the governance of biobanks / Nadja Kanellopoulou -- From benefit sharing to power sharing : partnership governance in population genomics research / David E. Winickoff -- Co-determination of donors in biobanks / Lukas Gundermann and Ulrich Stockter -- Developing an appropriate consent model for biobanks : in defence of "broad" consent / Margaret Otlowski -- Consent by research ethics committees : the new law on biomedical research in Spain / Antonio Casado da Rocha and Ismael Etxeberria Agiriano -- Addressing the ethical objections to pediatric biobanks / Kristien Hens and Kris Dierickx -- Deciding whether to participate in a biobank : the concerns of healthy volunteers / R. Jean Cadigan and Arlene M Davis -- Privacy interests in biobanking : a preliminary view on a European perspective -- David Townend ... [et al.] -- Feeding back significant findings to participants and relatives / Loane Skene -- Ensuring participant privacy in networked biobanks / Atieh Zarabzadeh ... [et al.] -- hSERN : a tool to help researchers with the legal requirements of cross-border exchange of biological material / Emmanuelle Rial-Sebbag ... [et al.] -- Biobanking networks : what are the governance challenges? / Jane Kaye -- Potential conflicts in governance mechanisms used in population biobanks / Karine Bédard ... [et al.] -- UK biobank ethics and governance council : an exercise in added value / Martin Richards, Adrienne Hunt and Graeme Laurie -- The end of individual control over health information : promoting fair information practices and the governance of biobank research / Trudo Lemmens and Lisa Austin -- From public inquiry to policy : biobanks, population genetics and the public interest / David Weisbrot.
- ISBN
- 9780754678250 (hardcover)
- 0754678253 (hardcover)
- LCCN
- 2009030145
- OCLC
- ocn429472462
- 429472462
- SCSB-8878447
- Owning Institutions
- Columbia University Libraries