Research Catalog

Title

Evaluating the feasibility of developing national outcomes data bases to assist patients with making treatment decisions / Cheryl L. Damberg [and others].

Publication

Santa Monica, Calif. : Rand, 2003.

Items in the Library & Off-site

Details

Additional Authors

• Damberg, Cheryl.
• Rand Corporation.

Description

xiii, 131 pages; 28 cm

Summary

Patients frequently face the need to assess tradeoffs between various treatment options and are being encouraged to become more active participants in their own care. This report examines the feasibility of establishing a national outcomes database that would be used by patients and providers to make more informed treatment decisions. The authors focus on an assessment of issues surrounding two such databases: one for prostate cancer and one for surgical treatment for patients with osteoarthritis. They found strong desire among patients to have access to an information source that would help them understand what the various treatment options are and what outcomes people like themselves could expect from each of the various options. Providers expressed support for the idea and seemed interested in finding ways to better organize and present information to help patients understand treatment options. Data collection systems that longitudinally track patient outcomes already exist, although none has taken the next step of making the information available for direct use by patients. The authors conclude that these systems demonstrate the value, desirability, and technical feasibility of establishing national longitudinal outcomes databases, but that substantial resources are required to design and operate them.

Subject

• Outcome assessment (Medical care) > United States > Databases
• Patients > United States > Decision making > Databases
• Patient education > United States > Databases
• Outcome assessment (Medical care)
• Decision making
• Patient participation
• Databases as Topic
• Treatment Outcome
• Decision Making
• Patient Participation
• Outcome Assessment, Health Care
• Outcome and Process Assessment, Health Care
• decision making
• Patient participation
• Decision making
• United States

Genre/Form

• Database
• databases.
• Databases
• Databases.
• Bases de données.

Note

• "MR-1708."
• "Prepared for the Agency for Healthcare Research and Quality."

Bibliography (note)

• Includes bibliographical references (p. 125-131).

Contents

A framework for assessing the feasibility of establishing national outcomes data bases -- Shared decision-making: a review of the literature -- Prostate cancer data base feasibility assessment -- Osetoarthritis data base feasibility assessment.

ISBN

• 0833034200
• 9780833034205

LCCN

2003008618

OCLC

• ocm52086163
• 52086163
• SCSB-1299565

Owning Institutions

Princeton University Library